ACTION video of Tay!

Taylor is still experiencing a few seizures every day, but his energy and action are uncontrollable!
Here's a video of what Taylor is doing every minute he's awake these days:
www.youtube.com/watch?v=OZYu8EdauoU 

We're thrilled, seeing as how he's been fairly floppy the last few months.  At this rate, we'll have to baby-proof the house soon!

Tay's 1st Braves Game !

Saturday evening Taylor attended his 1st Brave's game!  The weather was quite pleasant.  Taylor enjoyed the constant action, the cheers, and all the bright lights from the jumbotrons and fireworks.  Taylor just completed his 5th day on Vigabatrin and he's had some very good days.  Unfortunately the seizures haven't  ceased yet.  Many families say the drug usually takes at least 10 days to take it's full effect.

However, Vigabatrin has definitely unleashed Taylor's energy.  We've never seen him so active...even before the seizures.  He's constantly rolling over, pushing himself up with his arms, grabbing things and using his legs to propel himself around the floor...all the while babbling and yabbling away.

Tay wasn't happy about the Cardinals scoring...

ACTH Out....Vigabatrin In

We are weening Taylor off of the ACTH shots and moving on to Vigabatrin, an oral anti-epileptic drug.  ACTH seems to have knocked out a fair portion of his seizures, but we're 4+ weeks into the treatment and still seeing at least 8 a day.  Many children have found success with Vigabatrin when ACTH didn't work for them initially.  The side effects can be more severe, but we're praying for the best.

The last week has been a bit of a roller coaster with Taylor's moods.  He has definitely become more irritable and his appetite has become voracious.  His new game is to demand a full meal at 1am.....and then another at 5am....definitely reverting back to his newborn days.  Mom, Dad & Nina have all learned to make a bottle while sleepwalking.  :)
Here's a picture of our chunky monkey taking a little snooze:

Yes...bad hair day.