3rd One a Charm?

Last night, Taylor started his 3rd major anti-seizure drug, Topamax.  Last Wed, Taylor had an 8 hour EEG.  The neurologist said he noticed 4 seizures during the procedure so we're shifting gears to try and knock out these last few remaining spasms. 
Check back soon for a few great videos....we'll upload them this weekend. 
Keep your prayers coming...Tay's not out of the woods yet.

                                          "Thanks for my Halloween Costume Aunt Marilyn!" -Tay

You'll Want to See These Pictures! :)

Click on this link to view slideshow:
http://www.kodakgallery.com/gallery/sharing/shareRedirectSwitchBoard.jsp?token=696534162408%3A2050381736&sourceId=533754321803&cm_mmc=eMail-_-Share-_-Photos-_-Sharee 

GREAT PROGRESS !

Taylor unveils his
Fall Fashion
Tips!

It has been 7 days since we started infusing Klonipon, another anti-seizure drug, in with the Vigabatrin Taylor has been taking.  He has responded very well to the combination of the two.  Some days it seems he has no seizures at all.  And the seizures we think we see, have just a small fraction of the intensity of the ones a week ago.  Taylor is sleeping through the night again and his appetite for food is waaaay down, so some of the pudge and chunk seem to be falling away.  He's beginning to get his knees underneath him, track objects, focus more intently and grab a bit for hanging objects.  Milestones we're thrilled about! 

This Sunday is the Buddy Walk for the Down Syndrome Society of Atlanta.  We have plans to attend and walk with a family that's been coaching us through this ordeal.  Their daughter, Hannah, also has Downs and went through the Infantile Spasms situation a year ago.  <see pic of Hannah below>  Hannah is now seizure-free and leading an extraordinary life....and she's darn cute too!

Taylor continues to appreciate your Love and support.
Thank you.