Friday, August 27, 2010

Improvement, but not out of the woods yet

Our neurologist reviewed the EEG and there has been much improvement in his brainwave activity.  However, it has not completely normalized yet, especially during his sleeping hours.  Starting today, his steroid intake will be cut in half....only 1 shot a day!
We'll have another EEG next Friday.  The outcome of the results will determine if we stay with the current steroid or swtich to another drug. 
Lane's mom has been in town the last 8 days and has been a huge help with everything.  Thanks Nina!  And a huge Thank You goes out to Dick Taylor for lending her to us for the extended stay!  :)
love to you all.

Wednesday, August 25, 2010

EEG pic in action...

No News is Good News...

Our neurologist will be reviewing Taylor's EEG charts tomorrow morning and we'll have a conference call with him in the afternoon to discuss the results.  The improvements we've seen in Taylor over the last 6 days have greatly eased our tensions.  For instance, over the last six months we've average 3 soiled burp cloths per day from Taylor's spit-ups.  In the last 6 days, we haven't even used one.  His general demeanor of late has been cool, calm and content with an appetite like a competitive hotdog eater!
...look for an update tomorrow night.

Sunday, August 22, 2010

Look mommy, I'm not in the hospital!

Knock on wood, but it's the first weekend in 3 weeks we're not checked into Chateau de la Hospitale!
(yes, Travis, I know that's not grammatically correct)
We are 23 needle-sticks into the steroid treatments.  We don't want to get too optimistic at this early stage, but the past few days have been fairly decent for Taylor.  He is still having seizures, but the total number and severity of them have decreased noticeably.

We're keeping a detailed daily chart of everything that occurs.  Our next EEG is on Wednesday.  This will help us understand if his brainwaves have become less erratic since last Sunday.  The goal over the next several weeks is to completely suppress his seizures and normalize his brainwaves so he can return to learning the fun stuff in life.

The steroids have definitely increased Tay's appetite.  He's racking up the pounds by the minute, so you may not recognize our little sumo wrestler next time you see him.  :)

Taylor appreciates your continued concern.
more to come...

Sunday, August 15, 2010

Bad news & Good news...

Bad news:  Taylor had a very bad bout of seizures and vomiting all day Friday which led to an ER visit and a weekend in the Hospital.

Good news: He's feeling much better today.  He's now in the care of one of the best neurological doctors in Atlanta.  Today, Taylor is undergoing a 24 hour video monitored EEG test to monitor his brain-waves to help us understand his seizure patterns.  We're continuing our steroid treatments.  Doc said we should see improvement within 10-15 days of treatment.

Continue to pray.  We appreciate the outpour of concern and words of encouragement from everyone.  Taylor loves you.
:)

Thursday, August 12, 2010

Taylor perks up...

3 shots down....many many more to come!
Even in the few days Taylor has been on his medication, we have seen little improvements here and there.  For instance, the last 3 months Taylor has rarely given out smirks, smiles or giggles like he did in months 4-5.  On Sunday night, just before bedtime, Taylor went on a 5 minute smiling tirade.  Check out the You Tube video below:

http://www.youtube.com/watch?v=e7-UEWhrNYU

We believe Taylor was giving us a sign that everything is going to be OK and there will be great things in store.
:)