Tay is better but not seizure free. We've worked up a game plan for the next few weeks we can execute from home. We'll monitor how things progress and follow up with our Memphis docs weekly via phone.
They tell us the type of seizure Tay is experiencing isn't the same as the catastrophic kind he experienced 18 months ago. While that's positive news, our goal is still to get them to cease as soon as possible.
Thanks for everyone's support, love and prayers.
Monday, March 19, 2012
Sunday, March 18, 2012
Holding Steady...
Day 5 in Le Bonheur hospital is coming to a close. Taylor has had 9 seizures today, thankfully most haven't been painful for him.
We're currently at the highest level of Depakote possible so today we added a small dose of another anti-seizure drug, zonegram, to try to improve the results.
Our main Neurologist returns from vacation tomorrow so it will be nice to get his opinion on what our next steps should be in order for Taylor to "normalize" his brain wave pattern.
Hopefully our next post will contain positive news.
Best regards to all who have been praying for Taylor's recovery.
We're currently at the highest level of Depakote possible so today we added a small dose of another anti-seizure drug, zonegram, to try to improve the results.
Our main Neurologist returns from vacation tomorrow so it will be nice to get his opinion on what our next steps should be in order for Taylor to "normalize" his brain wave pattern.
Hopefully our next post will contain positive news.
Best regards to all who have been praying for Taylor's recovery.
Saturday, March 17, 2012
Tay's Seizures Return :(
After being seizure-free for over a year, last week Taylor's seizures returned. The first few days they were so slight and unnoticeable, we thought he was just losing his balance. Last Saturday and Sunday, we directly saw a few "twitches" that scared us so we called the neurologist in Memphis. He told us the Epilepsy Montioring Unit was pretty booked, but he could probably squeeze us in on Wed.
It's a good thing we went when we did. We checked in at 8am Wed morning. That day was a nightmare for Taylor. We recorded 34 seizures, many of which were extremely painful for him. We started his drug treatments at 2pm and slowly increased the dosage over a 24hr period. (same drug - Depakote- that cured him a year ago) We've seen a steady improvement:
Wed - 34
Thurs - 14
Fri - 8
Today so far... 2 (3pm now)
We will most likely stay here another day or two. We'd like to feel confident that we're on the right track before we unglue the 26 electrodes from his head. Lane is 35 weeks pregnant and handling everything much better than I am :)
With a little Irish luck and plenty of Faith, Tay will be healed very soon and back in Atlanta with his two favorite pups. He doesn't have much time to build up his strength before his little brother, Chance, comes storming into his world!
Happy St Patty's day all.
Love, Lane Chris & Tay
It's a good thing we went when we did. We checked in at 8am Wed morning. That day was a nightmare for Taylor. We recorded 34 seizures, many of which were extremely painful for him. We started his drug treatments at 2pm and slowly increased the dosage over a 24hr period. (same drug - Depakote- that cured him a year ago) We've seen a steady improvement:
Wed - 34
Thurs - 14
Fri - 8
Today so far... 2 (3pm now)
We will most likely stay here another day or two. We'd like to feel confident that we're on the right track before we unglue the 26 electrodes from his head. Lane is 35 weeks pregnant and handling everything much better than I am :)
With a little Irish luck and plenty of Faith, Tay will be healed very soon and back in Atlanta with his two favorite pups. He doesn't have much time to build up his strength before his little brother, Chance, comes storming into his world!
Happy St Patty's day all.
Love, Lane Chris & Tay
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